On the east aspect of San Jose, Calif., there’s an abuela who appears to have extra grandchildren than she will be able to depend.
“A lot of people see me and they hug me,” Mardonia Galeana, 89, mentioned in Spanish. “I don’t even know them, but sometimes they ask me for a blessing on the street and I do the best I can on their forehead.”
Her likeness has been featured in a portray within the San José Museum of Art and in a mural within the metropolis’s mission district. But it’s her on-line presence that has captivated the hundreds of people that have come throughout the photographs and movies posted by her grandson Yosimar Reyes.
“Seeing your Abuela smiling and having a good time truly warms my heart,” one person commented beneath a video of Ms. Galeana having fun with herself at a senior heart whereas others danced to a monitor by the merengue singer Elvis Crespo.
Mr. Reyes has been chronicling moments in his grandmother’s life on a non-public Instagram account adopted by greater than 21,000 individuals. His posts have proven a visit they took to New Orleans, their strolls along with his canine, Chulito, across the San Jose Flea Market, and occasional physician visits.
Although Mr. Reyes calls himself Ms. Galeana’s “personal stylist,” he’s at the start her caregiver — driving her to appointments, managing her medicines, ensuring she has a roof over her head.
“I take pride in the fact that I care for and dress my grandma,” Mr. Reyes, 35, mentioned. “That she’s not going to be out here in a muumuu. Her nails are also poppin’ and it’s a big self-esteem boost for her.”
Francesca Falzarano, an assistant professor on the University of Southern California Leonard Davis School of Gerontology, has a time period for the rising variety of individuals like Mr. Reyes who share behind-the-scenes appears on the day by day realities of offering round the clock look after older family members.
“In my research lab, we call them ‘carefluencers,’” Professor Falzarano mentioned. “Social media is really the only way a lot of these people are able to access support, education and a sense of belonging.”
Mr. Reyes, a poet and artist, was raised by his grandparents and got here with them to the United States from Guerrero, Mexico, within the early Nineties. “Even as a kid, I was already a caregiver,” he mentioned. “I had to translate documents and help my grandparents navigate this country because they were older and didn’t speak English.”
Mr. Reyes, who was named the 2024 Santa Clara County poet laureate, mentioned he has often discovered himself overwhelmed since he totally undertook the position of caring for his grandmother through the Covid-19 pandemic.
“I’m trying to build a career as an artist and as a writer, but then I still have to go home and have to take care of somebody,” mentioned Mr. Reyes, who has described his expertise as a caregiver in poems like “Abuela Gets a Fever.” “Some days, I’m emotionally depleted. And if she’s having a bad day, I have to make sure that I’m not reactionary.”
As the inhabitants ages, Mr. Reyes’s expertise is more likely to grow to be extra widespread. According to the Centers for Disease Control and Prevention, the variety of unpaid caregivers within the United States elevated to about 53 million in 2020 from 43.5 million in 2015.
Chris Punsalan of Las Vegas, who grew to become a caregiver for his grandmother Anicia Manipon eight years in the past, has shared his experiences together with her on YouTube, Instagram and TikTok.
“I decided to document us because I felt it was important,” Mr. Punsalan, 30, mentioned. “It’s not only for me to be able to look back on, but I also slowly realized that it was very helpful for people who have been through a somewhat similar situation.”
Mr. Punsalan, who has over two million followers on TikTok, has created content material out of tending to his grandmother’s bedsores, cooking her breakfast and sharing the merchandise he makes use of to are inclined to her wants. Since Ms. Manipon’s demise in January, he realized that his social media accounts have executed greater than present info and luxury for different household caregivers.
“During her funeral, my cousin said something that really struck a chord with me,” Mr. Punsalan recalled. “He said, ‘Whenever I miss my grandmother, I have a library of videos to remember her by.’”
Jacquelyn Revere, an aspiring TV author in Los Angeles, started posting about her experiences after she grew to become the primary caregiver for her mom and grandmother in 2016. She mentioned she discovered consolation whereas making an attempt to assist others in her place via social media, and the variety of individuals following her on TikTok grew to greater than 650,000.
“When I was posting my mom, it’s not like I felt like I had to — it actually became fun,” mentioned Ms. Revere, 37. “Social media brought so much validation with people saying, ‘You’re doing such a good job,’ and it became a place of refuge.”
Ms. Revere’s grandmother died in 2017; her mom died in 2022.
“Many of my caregiver friends are people who I’ve met on social media,” Ms. Revere mentioned. “We’ve really created a community that’s very close knit, because it’s hard to understand the weight of this role if you’ve never had it.”
While posting a get-ready-with-me-and-Grandma video on TikTok might convey caregivers a way of neighborhood, some viewers can’t shake the sensation that such content material is perhaps exploitative. Is a susceptible older relative ready to consent to look in a video, when the particular person recording it’s chargeable for administering her treatment?
“That is so heartbreaking,” one person commented on a TikTok video of an older girl struggling to eat. “I wish you all would have the dignity to stop posting these messages.”
But based on Professor Falzarano, the gerontologist, the advantages of caregivers’ sharing their experiences outweigh the dangers. “It’s really contributing to the greater awareness and visibility of chronic illness in caregiving,” she mentioned.
Professor Falzarano, 32, whose analysis is targeted on dementia, household caregiving and expertise for older adults, additionally famous that whereas there are a selection of assets available for anticipating mother and father, the identical couldn’t be essentially mentioned for these grappling with the top of life.
“We all have this universal experience where we’ll need to provide care or need to be cared for at some point,” Professor Falzarano mentioned. “Why not start thinking about it now?”
Ms. Galeana, who will flip 90 in December, hasn’t been in a position to return to the house in Mexico that she and her grandson left behind greater than three many years in the past. With no clear pathway to U.S. citizenship, the 2 have constructed a without end residence of kinds on-line.
“She’s old and she’s been through so much, from poverty in Mexico to all that we’ve experienced in the United States,” Mr. Reyes mentioned. “My goal now is to make sure that she’s happy and not always talking about how sad her life was. And people love her here and know her as the abuelita. It’s beautiful.”
Whether it’s being acknowledged on the market or having flowers or care packages despatched to her residence by strangers who’ve encountered her on-line, she has grow to be an area superstar.
“As a little girl, I wanted to be an artist,” Ms. Galeana said in Spanish. “I would dance and sing and want to be on the movie theater screen. But it never happened.”
But later that week, after Mr. Reyes had fastened her hair and executed her make-up, she was able to be the star of a video that might be seen by hundreds.